We are a self-organized group of COVID-19 long-haul patients working on patient-led research around the COVID experience and prolonged recoveries. We are all researchers in relevant fields – participatory design, neuroscience, public policy, data collection and analysis, human-centered design, health activism – in addition to having intimate knowledge of COVID-19.
Our goal is to collect data on those with COVID-19 prolonged recoveries – a group that has so far been under studied – and distribute that information to both the general public and to medical professionals.
We were born out of the Body Politic Slack support group, and continue to work within that community, but also operate independently and with other patients, support groups, and organizations.
We are actively looking for funding, partnerships, and journalists to write about our work – please reach out to us at email@example.com