Press

We have been lucky to be featured in publications like The Atlantic, NPR, and CNN and cited in medical journals like Fatigue and the British Medical Journal. Please reach out to team@patientresearchcovid19.com if you would like to write about our research.


Interviews

Science Magazine, “From ‘brain fog’ to heart damage, COVID-19’s lingering problems alarm scientists”

“In the Body Politic survey, respondents with negative test results were tested a week after those with positive ones, on average, but the groups did not differ in their incidence of 60 different symptoms over time. Those matching patterns strongly suggest that those with negative tests are indeed dealing with the same disease.”

The Atlantic

“…that research project that they did is such an important part of the picture. It’s the patients themselves taking their own care and their own health into their own hands and presenting really vital information that people need to be aware of.”

NPR

Stat, “My Covid-19 symptoms have lasted more than 100 days, and I’m not alone. Will they ever end?”

The Scientist, “Could COVID-19 Trigger Chronic Disease in Some People?”

KTVU, “COVID-19 support group brings attention to patients struggling relapses and months-long symptoms”

CBC, “Strange symptoms, flare-ups, weeks-long illnesses for some COVID-19 survivors”

Culturally Relevant Podcast, “Living with Covid-19 for over 100 Days”

Citations and Medical References

There needs to be some bidirectionality…to avoid institutional “top down” blind spots about the condition. We have been encouraged to find really interesting patient led research about long covid and antibody testing e.g. Slack Body Politic group, and all of this patient led data could be the foundation for supporting the rehabilitation of those affected by prolonged symptoms of covid-19.

British Medical Journal

Other Mentions & Discussions

Gay USA Podcast, Week of 5-13-20
The Guardian, “Lingering and painful: the long and unclear road to coronavirus recovery”
ME Action, “Citizen science highlights non-recovery in COVID-19 patients”

British Medical Journal, “Covid-19: Prolonged and relapsing course of illness has implications for returning workers” . June 23, 2020.

Fatigue: Biomedicine, Health & BehaviorPost-viral fatigue and COVID-19: lessons from past epidemics. June 25, 2020.

British Medical Journal, “Patients’ experiences of “longcovid” are missing from the NHS narrative”. July 10, 2020.

At the time of the survey, 91% of respondents reported not being recovered after 40 days of experiencing symptoms. Moreover, 70% of respondents reported developing new symptoms at different stages of the illness. Most alarming, many experienced systemic stigmas from a variety of sources that affected their ability to recover.

Fatigue: Biomedicine, Health, & Behavior

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