Commentary | Cell Press | October 2024
A call from patient-researchers to advance research on long COVID
Review Article | Nature Reviews Microbiology | January 2023
Long COVID: major findings, mechanisms and recommendations
Research Paper | Nature Mental Health | May 2023
Factors associated with psychiatric outcomes and coping in Long COVID
Review | Frontiers in Rehabilitation Science | April 2023
Female reproductive health impacts of Long COVID and associated illnesses including ME/CFS, POTS, and connective tissue disorders: a literature review
Research Paper | EClinicalMedicine | July 2021
Characterizing long COVID in an international cohort: 7 months of symptoms and their impact
Perspective Piece | Pain Reports | November 2020
Patient-Led Research for COVID-19: Embedding Patients in the Long COVID Narrative
Survey Analysis Report | May 2020
What does COVID-19 Recovery Actually Look Like?
Additional publications with external organizations
- Episodic disability framework in the context of Long COVID: Findings from a community-engaged international qualitative study February 27, 2025.
- Effect of nirmatrelvir/ritonavir (Paxlovid) on hospitalization among adults with COVID-19: An electronic health record-based target trial emulation from N3C January 17, 2025.
- Impact of extended-course oral nirmatrelvir/ritonavir in established Long COVID: a case series January 6, 2025.
- A cycle of invisibilisation: a qualitative study of Brazilian health system factors shaping access to long COVID care December 21, 2024.
- Protocol for an ambidirectional cohort study on long COVID and the healthcare needs, use and barriers to access health services in a large city in Southeast Brazil November 7, 2024.
- Finding Long-COVID: temporal topic modeling of electronic health records from the N3C and RECOVER programs October 21, 2024.
- Multi-method phenotyping of Long COVID patients using high-dimensional symptom data October 2, 2024.
- Long COVID and associated outcomes following COVID-19 reinfections: Insights from an International Patient-Led Survey September 24, 2024.
- Long COVID Among People With Preexisting Disabilities August 29, 2024.
- Characterizing Long COVID in Children and Adolescents August 21, 2024.
- Designing and optimizing clinical trials for long COVID August 13, 2024.
- Long COVID science, research and policy August 9, 2024.
- Using real-world data to accelerate the search for long COVID therapies August 5, 2024.
- Insights from an N3C RECOVER EHR-based cohort study characterizing SARS-CoV-2 reinfections and Long COVID July 11, 2024.
- Promoting Equity, Diversity, and Inclusion in Surveys: Insights from a Patient-engaged Study to Assess Long COVID Healthcare Needs in Brazil June 14, 2024.
- Hearing on Addressing Long COVID: Advancing Research and Improving Patient Care January 19, 2024
- Impact of COVID-19 vaccination on symptoms and immune phenotypes in vaccine-naÏve individuals with Long COVID January 12, 2024.
- Return-to-work with long COVID: An Episodic Disability and Total Worker Health® analysis October 20, 2023.
- Long COVID research risks losing momentum – we need a moonshot October 18, 2023.
- Employment and Material Hardship among Adults with Long COVID in December 2022 July 20, 2023.
- Development of a Definition of Postacute Sequelae of SARS-CoV-2 Infection May 25, 2023.
- Long COVID risk and pre-COVID vaccination in an EHR-based cohort study from the RECOVER program May 22, 2023.
- Effect of Nirmatrelvir/Ritonavir (Paxlovid) on Hospitalization among Adults with COVID-19: an EHR-based Target Trial Emulation from N3C, May 4, 2023.
- Conceptualising the episodic nature of disability among adults living with Long COVID: a qualitative study March 1, 2023.
- Coding long COVID: characterizing a new disease through an ICD-10 lens February 16, 2023.
- SARS-CoV-2 Reinfection is Preceded by Unique Biomarkers and Related to Initial Infection Timing and Severity: an N3C RECOVER EHR-Based Cohort Study. January 5, 2023.
- Generalisable long COVID subtypes: findings from the NIH N3C and RECOVER programmes December 21, 2022.
- A new clinical challenge: supporting patients coping with the long-term effects of COVID-19. October 10, 2022.
- Serology Test Results and Other Important Characteristics of Patients With Persistent COVID-19 Symptoms. March 21, 2022.
- Long COVID and episodic disability: advancing the conceptualisation, measurement and knowledge of episodic disability among people living with Long COVID–protocol for a mixed-methods study. March 7, 2022.
- Studying the post-COVID-19 condition: research challenges, strategies, and importance of Core Outcome Set development. February 4, 2022.
- Core Outcome Set for Research and Clinical Practice in Post COVID-19 Condition (Long COVID): An International Delphi Consensus Study ‘PC-COS’. January 31, 2022.
- Long COVID in children. January 1, 2022.
- Characterizing Long COVID: Deep Phenotype of a Complex Condition. November 25, 2021.
- Towards a universal understanding of post COVID-19 condition. October 5, 2021.
- Change in Symptoms and Immune Response in People with Post-Acute Sequelae of SARS-Cov-2 Infection (PASC) After SARS-Cov-2 Vaccination. July 28, 2021.
- Expanding our understanding of Post Covid-19 Condition, World Health Organization. April 24, 2021.
- Challenges in defining Long COVID: Striking differences across literature, Electronic Health Records, and patient-reported information. March 26, 2021.
- A Cytokine-based model for the pathophysiology of Long COVID symptoms. November 12, 2020.