Resources for Long Covid Researchers

Long Covid Symptom Lists

If you are researching Long Covid, we recommend asking about the following symptoms (ordered by frequency):

Very Common (experienced by majority of patients):
Fatigue
Worsening of symptoms after physical/mental activity (post-exertional malaise)
Cognitive Functioning issues, general
Sleeping issues, general
Neurological sensations, general
Headaches, general
Shortness of Breath
Temperature Issues, general
Poor attention or concentration
Tightness of Chest
Memory issues, general
Muscle aches
Dizziness / vertigo / unsteadiness or balance issues
Heart palpitations
Dry cough
Difficulty thinking
Short-term memory loss (memory that lasts ~30 seconds, i.e. remembering a phone number before writing it down, forgetting you’re in the middle of a task)
Tachycardia
Diarrhea
Insomnia
Sore Throat
Episodes of breathing difficulty/gasping for air with normal oxygen saturation
Smell/Taste Issues, general
Elevated temperature (98.8-100.4 degrees Fahrenheit, 37.1-37.9 Celsius)
Anxiety
Difficulty with executive functioning (planning, organizing, figuring out the sequence of actions, abstracting)
Chills/flushing/sweats
Tremor/Vibration issues
Loss of Appetite
Difficulty problem-solving or decision-making
Joint pain
Pain/burning in chest
Irritability
Nausea
Tingling/prickling/pins and needles sensation
Depression
Waking up several times during the night
Speech/Language issues, general
Skin sensations: burning, tingling, or itchiness without rash
Weakness
Difficulty finding the right words while speaking/writing
Tearfulness
Slowed thoughts
Vibrating sensations
Temperature lability (quick swings in and out of fever or elevated temperature)
Headaches, behind the eyes
Night sweats
Common:
Difficulty falling asleep
Abdominal pain
Difficulty controlling emotions
Apathy (lack of feeling, emotion, interest, or concern)
Stiff neck
Loss of smell
Long-term memory loss (long-term memory can be anything from remembering yesterday, forgetting you’ve done a task, forgetting recently learned information, or forgetting your third-grade experience)
Headaches, diffuse (entire brain)
Loss of taste
Blurred vision
Extreme thirst
Awakened by feeling unable to breathe
Headaches, in the temples
Lower Esophagus Burning / gastroesophageal reflux / acid reflux
Sensitivity to noise
Sense of doom
Sensation of brain pressure
Vision symptoms, general
Tinnitus
Tremors
Muscle spasms
Vivid dreams
Coldness
Lump in throat/difficulty swallowing
Feeling full quickly when eating
Fever (100.4 degrees Fahrenheit / 38 degrees Celsius or above)
Runny nose
Neuralgia (nerve pain)
Other temperature issues (not listed above or below)
Sensitivity to light
Itchy skin
Cough with mucus production
Changes to non-primary (second/third) language skills, if applicable
Difficulty communicating verbally
Dry eyes
Headaches, at the base of the skull
Mood swings
Sneezing
Heat intolerance
Skin rashes
Low oxygen levels (<94%)
Abnormally irregular periods
Changes in the voice
Eye pressure or pain
Ear pain
Altered sense of taste
Constipation
Nightmares
Waking up early in the morning
Electrical zaps/electrical shock sensation
Headaches/pain after mental exertion
Bone ache or burning
Hyperactive bowel sensations
Difficulty reading/processing written text
Anger
Itchy eyes
Migraines
Difficulty processing/understanding what others say
Phantom smells (imagining/hallucinating smells – smelling things that aren’t there)
Changes to the ear canal (such as pressure, blockage, burning, swelling)
Difficulting speaking in complete sentences
Feeling like you aren’t real/like you’re observing yourself from outside your body (depersonalization)
Low temperature
Abnormally heavy periods/clotting
Altered sense of smell
Abnormally high blood pressure
Floaters
Other eye symptoms
Menstrual/period issues, general
Other menstrual issues
Visibly inflamed/bulging veins
Acute (sudden) confusion/disorientation
Restless leg syndrome
Rattling of breath
Bradycardia (low heart rate, <60 beats per minute)
Petechiae (tiny purple, red, or brown spots on the skin, usually on arms, legs, stomach, buttocks, and occasionally inside mouth or on eyelids)
Other Sleeping Issues
Other temperature issues
Feeling like the world isn’t real (derealization)
Difficulty communicating in writing
Slurring words/speech
Lucid dreams (dreams where you are aware you are dreaming or have some control over what you dream about)
Thoughts moving too quickly
Bloodshot eyes
Hallucinations, general
Urinary issues, other
Vomiting
Pink eye (conjunctivitis)
Bladder control issues
Headaches, other
Peeling skin
Seeing things in your peripheral vision
Fainting
Numbness/weakness on one side of the body only
Other ear/hearing issues
COVID toes (discoloration, swelling, painful, or blistering toes)
Other ear/hearing symptoms
Sensation of brain warmth/”on fire”
Other eye issues
Abnormally low blood pressure
Forgetting how to do routine tasks (tying your shoe laces, washing your hands)
Heightened reaction to old allergies
Suicidality
Other Memory Symptoms
Pain in testicles (cis men)
Visual Hallucinations
Less common, but notable (up to 10% of patients):
Other Skin and Allergy Symptoms
Brittle/discolored nail
Sexual dysfunction (difficulty maintaining erection, vaginal dryness, difficulty orgasming)
Other Respiratory and Sinus Symptoms
Agnosia (failure to recognize or identify objects despite intact sensory functioning)
Phantom taste (imagining/hallucinating tastes – tasting things when there’s nothing in your mouth)
Speaking unrecognizable words
New allergies (food, chemical, environmental, etc)
Hearing loss
Other Cognitive Functioning Symptoms
Impulsivity (acting on a whim without self-control)
Redness on the outside of eyes
Heightened sense of smell
Sensation of facial pressure/numbness, left side
Dermatographia (writing on your skin causes red lines where you scratched)
Lack of inhibition (difficulty controlling your behavior)
Aggression
Not being able to make new memories
Double vision
Sleep apnea
Inability to yawn
Sensation of facial pressure/numbness, right side
Other Emotional Changes
Auditory (hearing) Hallucinations
Sensation of facial pressure/numbness, other
Itchiness, other
Euphoria (a feeling or state of intense excitement and happiness)
Inability to cry
Other semen/penis/testicles issues (cis men)
Numbness/loss of sensation
Pain in testicles (nonbinary patients)
Post-Menopausal bleeding/spotting (cis women over 49)
High blood sugar (if measured)
Other Speech/Language Symptoms
New/unexpected anaphylaxis reaction
Coughing up Blood
Blood clots (Thrombosis)
Hypomania (a milder form of mania)
Tunnel vision
Facial paralysis
Tactile (touch) Hallucinations
Decrease in size of testicles/penis (cis men)
Other semen/penis/testicles issues (nonbinary patients)
Delusions
Seizures (suspected)
Shingles
Heightened sense of taste
Mania (abnormally elevated/excited mood, decreased need for sleep, occasionally with delusions)
Hallucinations, other
Low blood sugar (if measured)
Decrease in size of testicles/penis (nonbinary patients)
Post-Menopausal bleeding/spotting (nonbinary patients)
Total loss of vision
Seizures (confirmed)
Early Menopause (cis women under 40)

We also recommend a second patient symptom list, made by Signe Redfield, which can be found at http://www.robotistry.org/longcovid/wiki/pmwiki.php/LongCovid/Symptoms.