Transparency

PLRC believes that transparency in research leads to more trust and collaboration, which brings us to solutions faster. We commit to sharing what we have learned, the initiatives we are working on, and the costs of getting things done.

Funding distribution from Balvi

$2,003,500: Establishment of a Patient-Led Research Fund
$382,250: Reinfection Study
$233,750: Low-middle Income Country Long COVID Quality of Life Study
$142,725: Long COVID Phenotyping 
$105,600: Quarterly Publication of Patient-Generated Research Hypotheses
$85,490: Operational Costs
$46,685: Expected Taxes

The funds from Balvi are allocated as follows:

  • $2,003,500: Establishment of a Patient-Led Research Fund: These funds will be directed towards providing grants to six Long COVID biomedical research projects, awarded by a panel of patient-researchers with expertise in post-viral illnesses. Eligible projects will include biomedical research, diagnostic devices, prevalence studies, and clinical trials. Uniquely, each grant will include patient engagement from PLRC at the study design, recruitment, analysis, and writing points of the research study.
  • $382,250: Reinfection Study: PLRC will analyze the impact of COVID reinfections on A) people with Long COVID, B) people who did not develop Long COVID following initial infection but did after subsequent infections, and C) people who have had COVID multiple times and have not developed Long COVID.
  • $233,750: Low-middle Income Country Long COVID Quality of Life Study: PLRC will research the quality of life of people with Long COVID in a select low-middle income country. 
  • $142,725: Long COVID Phenotyping: PLRC will identify Long COVID subtypes (clusters of characteristics and their progression) that may require different forms of treatment. 
  • $105,600: Quarterly Publication of Patient-Generated Research Hypotheses: PLRC will produce a quarterly publication of patient-generated hypotheses shared in the public domain for Long COVID researchers to pursue.
  • $85,490: Operational Costs: Will be used to cover costs like software, licenses, administrative costs, as well support of Body Politic.
  • $46,685: Expected Taxes: Will be used to cover costs of taxes.

Project Updates

Stay tuned! Project updates will be posted as we kick off our initiatives. For more information, see our press release and Q&A.

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