PLRC is pioneering patient-led research and advocacy on Long COVID since 2020. Our patient-researchers and patient-advocates offer unique perspectives to research and advocacy, combining scientific expertise with personal insights that bridge the gap between traditional research and lived experience. Our collaborative approach ensures research is both scientifically rigorous and deeply aligned with the needs and priorities of the patient community.
We offer a range of advisory services designed to support researchers, healthcare providers, and other stakeholders in developing more effective and efficient patient-centered outcomes. These services can vary in length and type of relationship based on your needs, from short-term consulting to long-term collaborative projects. Please email team@patientledresearch.com to set up a collaboration.
Pay Scale
PLRC offers services on a sliding scale. We understand that organizations of all capacities deserve access to high-quality services at rates that are fair and manageable. We are committed to working with you to find a solution that fits your budget while ensuring that patients are meaningfully engaged and fairly compensated.
Our Services
- Research: We consult on all stages of biomedical, clinical, and epidemiological research, from hypothesis generation through study design, analysis, and scientific writing. We are well-versed in identifying and providing solutions for the biases and challenges that are unique to Long COVID research, and in the context of clinical trials specifically, regularly recommend outcomes to measure and treatments to trial based on the evolving evidence base.
- Clinical guidelines: We identify needs for clinical guidelines and provide input on the most up-to-date research and best practices for clinicians.
- Speaking engagements and medical education: We present on a variety of topics that can count toward Continuing Medical Education credits, including an overview of Long COVID, the newest Long COVID research, and our own research. We also can present policy recommendations to government agencies and can discuss best practices for patient engagement in research using our scorecards.
- Evaluating patient engagement: We evaluate research organizations on their patient engagement using our scorecards and provide recommendations for how to improve their practices.
- Patient recruitment: Leveraging our expansive patient network, we assist in recruiting participants for studies and clinical trials.
Organizations we have worked with include
Mount Sinai Health System
World Health Organization (WHO)
Centers for Disease Control and Prevention (CDC)
National Institutes of Health (NIH)
Yale University
Vanderbilt University
Wayne State University
National Cohort Collaborative (N3C)
VA Saint Louis Health Care System
CURE-ID
Scripps Research Institute
Council of Medical Specialty Societies
American Academy of Physical Medicine and Rehabilitation (AAPM&R)
Project ECHO
University College London
McMaster University
Urban Institute
University of California San Francisco
Media inquiries, writing opportunities, and government advising opportunities can be directed to team@patientledresearch.com.