PLRC’s mission is to improve the breadth, depth, and speed of global research into Long COVID and associated conditions, and to advocate for policies that improve the quality of life for Long COVID patients worldwide. We ground our work in the principles of disability justice, and guide ourselves by knowledge that those who experience an illness can strengthen research and accelerate solutions.
The team is made up of ~50 primarily volunteer patient-researchers from multiple countries who are also living with Long COVID or other IACCs. Long COVID is a relapsing-remitting illness, and our members are living with ongoing disability. Because of this, our culture is disability-focused and we prioritize health. We ask for and do our best to accommodate accessibility needs. We encourage members to set up their work schedule according to their needs, except for participating in regular meetings. We prioritize saving spoons. We value asynchronous communication and generally work in Slack over calls as much as possible.
We are hiring for two roles at PLRC. These are both 6 month contracts with the possibility of extension. Ideal dates are mid-January to mid-July 2025, though there is some flexibility to start a few weeks earlier or later. Each of these roles can be between 25-40 hours/week, with PLRC’s needs being more comprehensively met by full-time roles. However, we can adapt the workload to accommodate applicants unable to work full-time, and we encourage applications from all individuals who can commit to at least 25 hours/week.
The Fundraising & Operations role is open to candidates from anywhere in the world, as long as your hours at least partially overlap between 12-4pm Eastern Time; the Partnerships & Advocacy role is US-based.
Salary: $80,000-90,000/year for full-time; for fewer hours, this would be proportionately scaled (i.e. 30 hrs/week would be $60,000-$67,500/year). Benefits may be available and vary based on hours worked and country location.
To apply, please fill out the application form here: https://forms.gle/z5gRridrZzVfJ3od8 Interviews will begin on a rolling basis, but the deadline to apply is December 31, 2024. If you require accommodations or more time during the application process, please email us at team@patientledresearch.com.
PLRC values diversity, equity, and inclusion. We strongly encourage applications from individuals of all backgrounds, including those from marginalized or underrepresented communities. We are committed to creating a workplace that reflects these values.
Both Roles: Key Qualifications
Role 1: Fundraising & Operations Manager
Role 2: Partnerships & Advocacy Coordinator
Both Roles: Key Qualifications
- Attention to Detail: These roles require a meticulous approach to all aspects of work, from managing operations to crafting communications.
- Flexibility & Initiative: As a small team, we need people who are comfortable wearing multiple hats and adapting to shifting priorities and deadlines.
- Commitment to Disability Justice: You are familiar with disability justice principles (and/or are open to learning more) and be able to commit to them. You are willing to work in an environment that adopts disability justice principles as a framework.
- Equipment Requirements: functioning computer, access to internet and ability to download and use Slack and Zoom. If you don’t have these, this is not an exclusion criteria; please mention it in your application.
- As a team of primarily disabled and/or chronically ill individuals, we understand the need for flexibility and empathy. Our work culture prioritizes accessibility, compassion, and sensitivity to the fluctuating needs of those living with chronic illness. The ideal candidate will be someone who is not only well-organized and self-motivated but also fully committed to a collaborative and supportive work environment that values flexibility and mutual respect.
Role 1: Fundraising & Operations Manager
Location: Remote
Hours: 25-40 hours/week
Start Date: ASAP
Length: 6-month contract, with possibility of extension
About the Role
We are seeking a Fundraising & Operations Manager at PLRC. In this role, you will lead fundraising efforts to support our ongoing research and advocacy work while also supporting administrative and operational needs to ensure the smooth running of the organization. This is a two-part role; you’ll lead on managing grants, donor identification & relations, and other fundraising activities while also working closely with leadership on day-to-day operational tasks. You will wear multiple hats, balancing administrative, operational, and fundraising responsibilities in a flexible, remote work environment. You should feel comfortable being self-directed and working as part of a non-hierarchical team.
Key Responsibilities
- Fundraising Strategy and Grant Management:
- Lead efforts to identify relevant grants, individual donors, and other partnerships to support PLRC’s mission and operations.
- Coordinate grant writing, reporting, and submission.
- Organize new ways of fundraising that may benefit PLRC.
- Build and nurture relationships with ongoing and new donors and funders through management of donor communications, acknowledgments, reports, and personalized engagement strategies.
- Track fundraising progress and manage reports and budgets for designated projects.
- Develop compelling fundraising materials, including proposals, reports, and donor updates.
- Coordinate PLRC’s fundraising volunteers.
- Maintain and leverage CRM data to identify key fundraising opportunities.
- Operations and Administration:
- Provide operational support for day-to-day activities, including responding to emails, interfacing with our fiscal sponsor, and coordinating communication between different PLRC teams.
- Assist with managing the team’s calendar, including scheduling meetings, tracking deadlines, and organizing occasional virtual events.
- Support the preparation of organizational reports, presentations, and documents for both internal and external stakeholders.
- Maintain accurate records, including databases for donors, partners, and other key contacts.
- Serve as a resource for, and when needed help improve organizational policies and practices to align with, accessibility standards and access needs.
- Assist with PLRC’s overall budget.
Key Qualifications & Skills
- Experience:
- Proven experience in fundraising, grant writing, and/or donor management within the non-profit sector, ideally with a focus on healthcare/public health/biomedical research or advocacy.
- Strong administrative and organizational skills, with a proven ability to juggle multiple tasks and meet deadlines.
- Experience managing budgets and financial tracking for projects and programs.
- Experience in project management or leadership roles managing others.
- Skills:
- Strong written and verbal communication skills, with the ability to craft clear and compelling materials for diverse audiences.
- High level of attention to detail and accuracy.
- Proficiency in using project management tools, CRM software (Little Green Light or similar), Slack, and Google Workspace (Docs, Sheets, Calendar).
Ideal Candidate:
You are an organized, proactive, and detail-oriented individual who thrives in a flexible, collaborative environment. You’re comfortable working on multiple projects at once and have experience doing self-directed work. You are passionate about making a tangible impact in the Long COVID space. You have deep familiarity with the Long COVID research and/or advocacy space, and ideally have lived experience or are a caregiver of someone with Long COVID or associated conditions. You’re comfortable wearing multiple hats, with a strong ability to balance fundraising priorities alongside operational needs.
Social and Environmental Entrepreneurs (SEE), which is PLRC’s fiscal sponsor, is an equal opportunity employer.
Role 2: Partnerships & Advocacy Coordinator
Location: Remote
Hours: 25-40 hours/week
Start Date: ASAP
Length: 6-month contract, with possibility of extension
About the Role
We are seeking a Partnerships & Advocacy Coordinator to work closely with the PLRC leadership team. You will play a pivotal role in building and maintaining relationships with key partners and stakeholders, as well as advocating for Long COVID patients at local, national, and international levels. In this role, you will oversee some components of internal operations including coordinate advocacy volunteers, collaborate with other patient organizations, and engage with government agencies, researchers, and policy-makers to ensure that PLRC’s voice is heard in important policy and research discussions. This is a flexible, remote role that will require you to manage multiple tasks while maintaining a high level of detail and organization.
Key Responsibilities
- Relationship Building and Partnerships:
- Build and nurture relationships with other Long COVID organizations, patient advocacy groups, and stakeholders in the disability/healthcare/public health/biomedical research ecosystem.
- Engage with government officials, research institutions, and medical associations to advocate for policy changes that improve the quality of life of Long COVID patients.
- Coordinate collaborations with outside organizations and manage communications around joint projects or initiatives.
- Serve as a liaison between PLRC and key partners, ensuring ongoing dialogue and collaboration.
- Communicate information about partnerships within PLRC’s committees.
- Advocacy and Policy:
- Lead efforts to ensure PLRC’s research, recommendations, and policy positions (research, healthcare, disability, social support) are represented in relevant government and institutional conversations.
- Manage team of policy/advocacy volunteers.
- Monitor developments in Long COVID research and policy to identify opportunities for advocacy and action.
- Help draft policy briefs, position papers, and other materials that communicate PLRC’s perspective on key issues.
- Coordinate advocacy campaigns, including outreach to lawmakers, media, and other key stakeholders.
Key Qualifications & Skills
- Experience:
- Strong background in relationship-building and managing key connections and partnerships, particularly in a health, advocacy, or research context.
- Proven experience in policy work.
- Experience in project management or leadership roles.
- Experience in several of the following:
- strategy and communications;
- managing key connections and partnerships;
- liaising with governmental organizations;
- representing organizations in high level meetings
- community organizing and coalition building
- Ideally, experience in engaging with or working within local, state, or federal government in the US
- Skills:
- Strong communication skills, both written and verbal, with an ability to distill complex topics into clear messages for a variety of audiences.
- Excellent organizational and time management skills with the ability to effectively prioritize tasks.
- Strong interpersonal skills.
- Experience using project management tools and collaboration platforms (Slack, Google Docs).
Ideal Candidate:
You are an excellent communicator and relationship builder. You have strong organizational skills, an eye for detail, and a passion for advocating for change in the Long COVID space. You have deep familiarity with the Long COVID research and/or advocacy space, and ideally have lived experience or are a caregiver of someone with Long COVID or associated conditions. You are comfortable taking initiative and working independently while maintaining a collaborative approach to your work. Flexibility, adaptability, and good interpersonal skills are essential.
Social and Environmental Entrepreneurs (SEE), which is PLRC’s fiscal sponsor, is an equal opportunity employer.